The IV team came up to place the picc line in Lilly's arm. It is so hard to watch her have to go through all of this. We are very grateful she's being taken care of, but oh how I wish it were easier on her. She was nervous and crying when they gave her some medicine to help relax her. It didn't help - so they gave her the strong stuff. It makes her eyes shake which means the medicine is working. Then they sent us out of the room and told us they would be finished in about 45 minutes.
The word of the day today is HOME. We are hoping to go home today. After her picc is placed, she will get chemo a day early so we don't have to come back to clinic tomorrow. I just want to go home and have Lilly be a "normal" ALL patient. This is supposed to be an outpatient treatment. No more being admitted in the hospital. Hopefully we are just getting all of the bumps out of the way now and we can get into more of a routine soon.
I love you sweet little Lilly! I'm so sorry you have to go through all this! Be strong and brave sweetheart! HOME sounds like a wonderful word today! Love You!!
ReplyDeleteIt is so hard knowing that she is having to go through all this, but she is a strong and brave little girl. I'm so sorry it was so hard for her again. Looking forward to her getting home today and being home for a week. Pray that she will be able to get into a routine soon. Love you so much Lilly.
ReplyDeleteWhat determination and strength even a 6 year old has. What faith and optimism a small little girl posses. What a positive smile each day gives us such hope. What a little angel, like Lilly can teach all of us.
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