So, it's been some time since we've posted any news about Lilly on her blog. I guess that means she's finally reached some stability in her treatment. Though she still receives a chemo pill every night and has a spinal tap once a month with additional chemo. We'd like to say things have become somewhat normal for us but, that will never be completely true. At least not in the since that things will go back to the way they were before Lilly was diagnosed. I know our family will never be the same... But, then again I wouldn't want it to be. Over these past 19 months our family has changed so much. There have been a lot of ups and certainly some really down lows. But, through every step we've felt the constant love and support from so many. There always seems to be some event coming up to help us forget for just a moment or at least put it in the back of our mind the living battle Lilly is faced with and the constant fear that we could lose her. Wonderful people have come into our lives and strengthened and enriched us with the capacity to move forward with Faith and Trust that things are in the Lords hands, and that we just need to be believing.
Here are some of the fantastic people and events that have given us what we need to carry on.... Love, Friendship, and of course FUN!!!!
Lilly was able to participate in a Flag Ceremony with Felix and other kids at the Falconz western conference bowl game.
I was able to participate with the Mascots in the half time show and play soccer in a bubble against the Mascots. Oh, that was SO much fun.
Lilly wanted to try it out
Willy was curious what she was doing.
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