Showing posts with label Lilly. Show all posts
Showing posts with label Lilly. Show all posts

Sunday, May 11, 2014

What a Mother Means to Lilly, Emery, and Myself

Not often in my life has there been moments of "aha, I get it!" But on occasion something in life comes along and changes your entire perspective and what can only be described as glimpses of reality amid chaos.  Two of these moments came to me as Lilly and my family have been hurdled into this chaotic normalcy we now find ourselves in.  The first one came to me during the first few weeks of Lilly's diagnosis.  When Lilly would cry on my shoulder in pain saying: "Dad, why do I have to do this... Can't it be someone else's turn?".  I could only reply with tears swelling up in my eyes: "I would Lilly... if I could... I would!!!" It was in that moment when I gained that "aha" perspective of just how difficult it must have been for our Heavenly Father to watch his son Jesus Christ, our brother, suffer so exceedingly and know that he could do nothing.  Even when Jesus prayed so earnestly saying: "O my Father, if it be possible, let this cup pass from me...", Heavenly Father knew he could not "fix it" though he had the power to do so.  That has been the MOST difficult part of this for me, me being the "I can fix that" person that Lilly knows me for and not be able to.  I have gained more understanding on Gods love for all of us and learned that I must trust in the Lord and have faith in his plan.

The second moment came not so sudden but gradually as each day passes and I watch how Tiffany and Lilly's relationship has strengthen.  Watching Lilly rely on Tiffany for strength, comfort, and security and how Tiffany has found by the grace of God the added strength she needs to be that anchor for Lilly. But, not only an anchor for Lilly but to Emery as well.  I realized that all mothers have the amazing power within themselves to strengthen those closest to them.  My thoughts turned to Jesus' Mother Mary when she was watching him upon the cross and Jesus called out to her saying: "Woman, behold thy son!" Oh, how awful that must have been for her to watch her son upon the cross, but how her presence must have given him strength in his last moments.  I know that Tiffany has strengthened Lilly, Emery and me even though she may feel weak, stressed and overwhelmed she has managed to receive her daily bread from Heavenly Father and shared it with us.

It's in those "aha" moments that I realize it's God's plan for us and that we are his children and that he LOVES us and is constantly watching over our every moment.  Though Friday-Saturday were challenging days filled with physical pain and unyielding emotions, and although I can't "fix it", he has given us Tiffany, the Mother of my children to strengthen us.  

So what is a mother? A mother to me is Strength given to another who is facing opposition.  Someone who puts others needs above her own. Someone who teaches and inspires us to be better than we are. Someone that is willing to do anything for their child even if that meant given up her own live.  There have been many wonderful Mothers in my life that have given me strength when I needed it most.  So, may I express my love and gratitude first to my day to day strength, Tiffany, and secondly to all those that have helped Mother me into who I am today.


Happy Mother's Day to a Beautiful Mother




Thanks to all those Special Mothers in the World!

Wednesday, April 30, 2014

The REAL Elsa came!!

On Monday (4/21) the REAL Elsa came to our house to visit Lilly! An amazing company called "In What Language" set it up and it made Lilly so happy!!! She definitely needed happy days like this after the hard weeks she had prior.


Look at that smile! Lilly and Elsa read a book together, and sang and danced...


She felt like a true princess and Elsa was so sweet with her!


By the end, Emery finally warmed up to Elsa and wanted to be a Princess just like her big sister. I love my girlies so much!

Tuesday, April 8, 2014

Chemo Reaction


So, after the spinal tap it was up to get her long round of chemo (PEG-Asparaginase). She unfortunately had an allergic reaction to the chemo. She started coughing, complaining about her stomach hurting, then she began violently throwing up, and the whites of her eyes turned pinkish. They quickly stopped the chemo infusion and gave her Benadryl through her port which made her quickly fall asleep. They are currently watching her to ensure the reactions don't flair up again, since this chemo is long lasting. They now gave her hydrocortisone to help with the reaction. We've been here since 7:30 this morning and it sounds like we'll be here for a while longer. Needless to say it's been a long day. 




And the Monkeys Name is?

Hi, my name is Millie.  Thanks for helping Lilly find a great name for me. I will be attending school for Lilly while she is getting better. I think the next time you see me I'll have bows on my ears and a new outfit ready to go to school.  I can't wait to meet new friends and do new things for Lilly at school. I wonder what fun things her teacher and classmates will have for me to do? 


The final results of the poll. It's pretty clear that Millie is the perfect fit

SelectionVotes 
Lilly (Purity and beauty) 6%
Valerina (strong) 8%
Einstein (One Stone) 4%
Bernadette (brave bear) 14%14 
Captain Underpants 8%
Millie (gentle strength) 36%35 
Lovely 1%
Braverly 9%
Faith 8%
Hope 5%
98 total 

Thanks again for all those that helped in naming Lilly's Monkey. 

Saturday, March 29, 2014

New Flyer

Millie's Princess Foundation revealed the flyer to advertise the Prince and Princess of this years 5k Run/Walk.  Couldn't be more grateful for the wonderful things they've done to help Lilly be a Princess. 

Love my two beautiful Princesses