Lilly was supposed to be admitted last Friday to start the next phase of treatment, but she didn't make counts. Her platelets and ANC have to be high enough to withstand the high dose methotrexate that she needs. So, we were delayed. We've been delayed twice now. It's kind of hard on Lilly because she mentally prepares herself to go in and stay at the hospital and then it doesn't happen. She just wants to get it over with. So we need prayers for Lilly that her counts will go up. We get another blood test on Monday and hopefully they will be high enough.
Since we didn't get admitted, we wanted to make the best of the long Memorial Weekend. We got special permission to go to the new aquarium after hours. Lilly's ANC is only 100 which is very low and she could very easily get an infection. So no people around is the best way to go! We are grateful for kind people in this world who are considerate of Lilly and her situation and allow us to still do fun things with her. We had our own personal tour guide and we had FUN!
The seahorse was one of Lilly's favorite animals to see. So tiny. Like the size of a nickel.
Em had so much fun going across the rope bridge with her Daddy!
The penguins were pretty fun to watch.
Very friendly too.
Jellyfish.
Family Photo. We sanitized our hands A LOT! I think I went through 3/4 bottle of hand sanitizer and we were only there for an hour and a half!
The aquarium just got this little guy on Monday and he is so cool! It's called a Cuttlefish. It's related to the squid and octopus. He was very friendly and kept watching Jay move around. He even changed colors for us!
We thought this was pretty special to find... An exhibit sponsored by the Flamm Family in Loving Memory of Millie. Even though we never got a chance to meet Miss Millie, we have a great love for her and her family.
Sea Turtle. Another one of our favorites.
Lilly was kind of scared of the shark tank. She doesn't get around water much. I think it's pretty cool we have a shark tank in UTAH!
Lilly liked this fish because it was purple and orange! Her two favorite colors!
Our tour guides: Karli and Curtis. Thank you for allowing Lilly to come to the aquarium. She had so much fun and is still talking about it. WE LOVE GOOD DAYS!!! But, we do need to pray for Lilly's counts to go up so we can continue this journey. Thank you all for the love and support you have given to our family. It means so much to us!
Conner did a unit in school on animals and natural camoflouge. We watched you tube videos of the cuddlefish, so its awesome they have one! Even more cool that you got to see it change. I can't wait to see the new aquarium. I am so glad Lilly still gets to do those things that engage her inquisitive mind! Her counts will go up I just know it!!!
ReplyDeleteHi Lilly,
ReplyDeleteI am so happy you got to spend time at the aquarium and have a fun day out with your family. I have read your blog through Michalla's and both you girls are in my thoughts and prayers. I am Clint's aunt Karen in California and he is Michalla's friend. I pray for an awesome healing for you and can't wait to see a blog when you dance again. God bless you Lilly and as Michalla would say "kick cancer's butt"! May the lord bless you and bring your counts up. Prayers to you and your family.
So cool! I also love her princess wig.
ReplyDeleteWhat a fun exciting day. That looks like a place that aunt Teri would like. There are millions of amazing, loving people. Small blessings come in unexpected ways. One minute we don't want our loved ones suffering and the next we want to hurry and get it over with. Just remember that no matter what happens there is a reason , sometimes we don't know what it is until after the moment happens. But with each and every one the Lord knows! !!!!! Sometimes even to the point that he saves us , that's when our palms start to sweat and our heart starts to race and we realize fully just how close he really is. Just how much he really loves us. Those Moments Are The Times We Shed Tears Of Gratitude! Love you all so much.
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