Lilly has been accepting the high dose of methotrexate really well. The main reason for her being admitted is the possible side affects of the chemo. They are always neverous about how each child reacts to the various types of chemo given and Lilly has been the exception on so many cases. Dr. Doug Fair calls her a delicate flower. This is a treatment where she is more likely to have complications. Some of the typical side affects may include: Mouth sores, kidney and liver problems and of course in uncommon case "even death". It's always nerve racking to read the risks and side affects of the meds they give her. That being said she has done exceedingly well, with no visible or apparent side affects. It truely has been a BLESSING, like the word of the day yesterday indicated.
We have, taken Irish's advice advice to Lilly and made it our word of the day. Yesterday he came in with the word DRINKNP to help remind Lilly that she needs to DRINK-AND-PEE to help get the high dose of methotrexate out of her body quicker.
Last night we were also able to go out of our room to make new friends with another little girl, Italia, Lilly's age, that just found out she has ALL. Lilly was so excited to help her feel better, just like Michalla did for Lilly when she was first diagnosed. We still continually pray for Michalla and the day when Lilly can go visit her again.
Today, on KSL they are doing a telethon for Primary Childrens Medical Center. A few months ago Lilly was interviewed by KSL and was a told she would be on the telethon. So, if you'd like see her tune in at 11-2:30 and 6-9 pm. We will also try to post a link if we can.
Thank you for such a wonderful update. I'm once again so impressed with this family test you are all going through. I posted on my fb wall a message about the Refiners Fire, I hope you and Tiffany get the chance to read it. Having said that I see such a huge change happening with your family as you are going through with lilly your own refiners fire. Reading what you both are writing is such evidence of that in so many ways. The realization, hope, faith, trust, gratitude, strength, spiritual understanding, knowledge, love, endurance and my of course favorite POSITIVE ATTITUDE!!!!!! Has made all the difference in what's happening each day and the continued outcome as each of you have truly become acquainted with our Heavenly Father. I love each of you dearly. As I have put each of your names on the prayer roll each Friday I have felt a calm assurance that the Lord truly loves your little family and especially at this time lilly. Just keep putting your whole trust and faith in him even as a little child.
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