Little Update

Lilly had clinic on Friday, so I thought I'd post a little update. Things are going well. I think they finally have her oral chemo doses figured out because we haven't had to adjust her dosage for a couple of months. Yay! She's still on a super low dose, but it works for her. She's just sensitive to medicine like her mama! ;) Unfortunately, Lilly had to have her spinal tap in the OR instead of the RTU. Bummer. It was pretty hard on Lilly because it's not something she's familiar with. When we go to the RTU (Rapid Treatment Unit) it's super fast. We check in. I go back with her to get the sleepy medicine. She gets her back poke. She wakes up super fast. We go home. Easy Peasy. In the OR, there is so much waiting and waiting and waiting and it makes for a very loooong day. The scariest part of going to the OR for Lilly is that mom or dad can't go back with her. But, we have AMAZING doctors and nurses at Primary's who do whatever they can to help. Aubri, one of Lilly's favorite nurses, was able to come down to the OR and go back with Lilly until she fell asleep. That meant so so much to us as parents. When it was time for us to go back to the recovery room and get Lilly, she would not wake up! I'm guessing they give more sleepy medicine in the OR than in the RTU. So so sleepy! Lilly did great though. I am always amazed at her strength and bravery. We also found out more info on her broken foot... Dr. Doug called and talked to an Orthopedic Specialist and they decided she needs to be non-weight bearing for another 4 weeks. That bummed Lilly out. We're just not sure how she's going to heal while being on chemo. Lilly is super sensitive to everything, so who knows what this new adventure will bring! She wants to run and play and do fun things since summer is just around the corner, but she'll just have to wait a little bit longer. Anyone have any fun "sitting down" activities for a 7 year old?!? 

I'll take all the help I can get!