Every day since Lilly was diagnosed we've had a 'word of the day'. It's something we focus on when Lilly is having a hard time. The first day was "Happy." We've had the word "Giggles" and "Smile" and "Joyful." I'll have to post more about the rest of our words... But, it is our goal to have a word of the day every single day until Lilly is finished with this journey.
Today we went to clinic. It was our first time. We should have been once already, but we kept getting admitted to the hospital. It was nice going to clinic. More like a doctors visit. Lilly had to get her port accessed. She was nervous. But, she did great. We put a numbing cream on her skin over her port just before we left for our appointment so that when we got there, it was numb and she didn't feel anything but pressure when it was accessed. Lilly decided she wants to use the numbing cream and get her ears pierced! Why not, right? We told her doctors that and they told us to patent the idea and make a lot of money off of it!! :)
After Lilly got her port accessed, she had blood drawn, and then we met with a couple of different doctors. She met with Dr. Doug Fair. He's our favorite. He is so sweet with Lilly. We love him. And then she met with Dr. Mike. He is the head honcho over Dr. Doug. It was our first time meeting with him. He was nice too.
Dr. Doug - checking Lilly's mouth for sores. That's a side effect from the chemo. :(
Lilly thinks Dr. Doug's hair looks like Prince Eric. What do you think? He said that's the nicest comment anyone has given him! Dr. Doug makes Lilly happy!!
Then we went to the infusion room and Lilly got her chemotherapy. And then we were sent home for the day. It was nice not to have to stay in the hospital, but it makes me sad how Lilly feels. Her tummy hurts her so much tonight. She's in tears sometimes. Say an extra prayer for Lilly tonight. Chemo days are hard on her.
Glad that she was so brave having them access her port. And I know Dr. Doug loves Lilly too, he calls her names like sweetheart, etc. I think he looks a lot like Prince Eric, Lilly you were right. You're so brave Lilly, Love you.
ReplyDeleteSweet Lilly is right about Dr Doug... He's totally Prince Eric! I hope she beats this fever quickly!
ReplyDeleteIt's so nice to read your blog Tiffany. I get bits and pieces and now I'm all caught up. I've had a lot of appointments up at Primary Children's recently because I myself have had to see a Pediatric doctor. I feel such a strong, healing spirit every time I go up there. I know your Lilly will get through all of this. I'll keep praying for her. Stay strong and keep fighting.
ReplyDeleteLove, Barry
When hard times come like this tell lily to start singing or humming her favorite primary songs. Play lots of church songs and read or listen to the children's set of Scripture. We love you lilly. Love aunt Teri Wilkinson
ReplyDeleteAlways praying for Lilly and for you and Jay. Lilly you are so brave and strong! Love you.
ReplyDeleteHa ha that pic of Prince Eric cracked me up! How funny. Are you keeping a simole word of the day journal?
ReplyDeleteEstaremos sempre orando por Lilly, o Senhor dará forças á ela para vencer essa doença e á seus pais para superaram esse momento tão dolorido! Força e confiem no Senhor!!!
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